tag:blogger.com,1999:blog-87593701197433348242024-03-14T13:04:15.298+11:00alopeciology the art of living with alopeciaPathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-8759370119743334824.post-76189307995226826422018-01-14T17:12:00.002+11:002018-01-14T17:12:45.550+11:00Prof Nichola Rumsey updates adjustment to visible difference<div class="_5pbx userContent _3576" data-ft="{"tn":"K"}" id="js_6t" style="font-size: 14px; font-weight: normal; line-height: 1.38; margin-top: 6px;">
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<span style="font-family: Arial, Helvetica, sans-serif;">From the eminent UK psychologist Professor Nichola Rumsey. The state of knowledge on the psychosocial impact of skin conditions that alter appearance. Alopecia gets a specific mention - Your psychologist will love this!!!<br /><a href="https://www.sciencedirect.com/science/article/pii/S235264751730076X">https://www.sciencedirect.com/science/article/pii/S235264751730076X</a><br />Free download.</span></div>
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<img alt="" class="scaledImageFitWidth img" height="158" src="https://external-syd2-1.xx.fbcdn.net/safe_image.php?d=AQA_4NSsD6qGpNZG&w=160&h=160&url=https%3A%2F%2Fsdfestaticassets-us-east-1.sciencedirectassets.com%2Fprod%2Fa092afc25f42bb95ff609db917e5198de5d5746f%2Fimage%2Felsevier-non-solus.png&cfs=1&upscale=1&fallback=news_d_placeholder_publisher&_nc_hash=AQDyEa5IJSDUkEpX" style="border: 0px; height: auto; min-height: initial; position: relative; vertical-align: bottom; width: 157.995px;" width="158" /></div>
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<a data-lynx-mode="async" href="https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.sciencedirect.com%2Fscience%2Farticle%2Fpii%2FS235264751730076X&h=ATP_0EISPsAJQcXhAuk4zC2LMGArCaaFo4Ub5OkAmAA8TKVWnluDs76y6qfIzOljEK-4Gc0bJaHzltyZ_QWyK0X_XfeKcVaLPCYGbECRDJC_2bwJtc2n0gR35J0Q1OTrpQwVoMKr1QSPeg0ISCIj1JU8JpeH5SrGjEJeJshrX1yJpWvywBWE7DwFF-LEt8ocSf63SooFC2aOtEvGRRd13DQtwQELt5gCqZuXmJK6NqV9APMc84CPpMRvTJSOimDaW5fm8LwJzmGl-e_6n-soBQrp7Gq2k89OuuspWjeE" rel="noopener nofollow" style="color: #1d2129; cursor: pointer; font-family: inherit; text-decoration: none; transition: color 0.1s ease-in-out;" target="_blank">Psychosocial adjustment to skin conditions resulting in visible difference (disfigurement): What do we know? Why don’t we know more? How shall we move forward? - ScienceDirect</a></div>
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SCIENCEDIRECT.COM</div>
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com2tag:blogger.com,1999:blog-8759370119743334824.post-88502860512746102262016-02-12T16:09:00.003+11:002018-03-27T08:19:08.304+11:00Zarleen Blakeley's approach to portraiture "I'm not my hair"<div style="margin-bottom: 0in;">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgq-ck28DRuAkjlZIq6iMjqxJqMZLknGrfdg40g7WqHmHiD3WVGz5BPckpY381mjsWENuk_yb6NkgtFAa0XzqdhyphenhypheniL8MUpV8TPgXHZNkwrfdnWRwRealhY9l36oEqPs7NAfrAfrtkONIJrw/s1600/Zarleen+self+Portrait+ffo.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgq-ck28DRuAkjlZIq6iMjqxJqMZLknGrfdg40g7WqHmHiD3WVGz5BPckpY381mjsWENuk_yb6NkgtFAa0XzqdhyphenhypheniL8MUpV8TPgXHZNkwrfdnWRwRealhY9l36oEqPs7NAfrAfrtkONIJrw/s400/Zarleen+self+Portrait+ffo.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: #0000ee;"><u>Zarleen's self portrait (<span style="color: #0000ee;"><u>used with permission)</u></span></u></span></td></tr>
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<span style="font-family: "arial" , "helvetica" , sans-serif;"><br />Zarleen is <span style="font-family: "arial" , "helvetica" , sans-serif;">a</span>n Australian photographer
who has demonstrate<span style="font-family: "arial" , "helvetica" , sans-serif;">d</span> an alternative wholistic approach to presenting portraits of
women who for various reasons have lost their hair. Her project “I'm
not my hair” is a <i>'.....portrait series of women who have a hair loss condition but are not defining themselves by it</i>' </span></div>
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<span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;">This is an</span> empathic and humane
visual communication of the hair loss experience. We know these women from what they tell us because the photographer has encouraged them to co-create their image and to communicate more than their hair loss appearance, in marked contrast <span style="font-family: "arial" , "helvetica" , sans-serif;">with</span> more clinical approaches.<br /><span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><br />To quote the photographer :</span></span></span><span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;">
</span></span></span><br />
<div align="LEFT" style="line-height: 0.17in; margin-bottom: 0in; orphans: 1;">
<span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="color: #141823; font-size: small;"><i>“</i><span style="font-style: normal;"><span style="font-weight: normal;"><i>The
series depicts how they are more than their hair and shows each
person in an environment where they're enjoying something they're
passionate about, including music, books, road-tripping and
photography!"</i></span></span></span></span></div>
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<span style="font-family: "arial" , "helvetica" , sans-serif;">See the portraits on Facebook <a href="http://on.fb.me/1Vwlnny">http://on.fb.me/1Vwlnny</a></span></div>
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com2tag:blogger.com,1999:blog-8759370119743334824.post-11634252573481162602016-02-05T12:32:00.000+11:002016-02-12T17:11:55.722+11:00No Lights No Lycra Goes Global! Sixty locations worldwide.<div style="text-align: left;">
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<span style="font-size: small;"><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , serif;"><span style="font-size: small;">In
September 2014 we posted on the No Lights No Lycra phenomenon.<br />It's
gone global people!! No Lights No Lycra now exists in over 60 diverse
locations worldwide. Here's an update from Assemble Papers
writer Hudson Brown.</span></span></span></span></div>
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</table>
<h3>
<br /><span style="font-family: "georgia" , "times new roman" , serif; font-size: small;"><span style="font-size: x-small;"><span style="font-weight: normal;"></span></span></span></h3>
<h3>
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<tr><td class="tr-caption" style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirMtLzdkBI_H2lVwB0kalEzwQuUnUQjvKT902KT4t24bGt6wxx_osdGlFJd5p3-_UAAiGX-l-0vZLz3ykCpKrvD_-3XwBl_O_BveDlQ3i_TAAMdQlhynFtjIQ7HNDxWqa9JurKNqIwyUhE/s1600/NLNL_ALICE_HEIDI_05-690x380.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirMtLzdkBI_H2lVwB0kalEzwQuUnUQjvKT902KT4t24bGt6wxx_osdGlFJd5p3-_UAAiGX-l-0vZLz3ykCpKrvD_-3XwBl_O_BveDlQ3i_TAAMdQlhynFtjIQ7HNDxWqa9JurKNqIwyUhE/s1600/NLNL_ALICE_HEIDI_05-690x380.jpg" /></a><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif; font-size: small;"><i>Alice Glenn and Heidi Barrett at Schoolhouse Studios in Collingwood, Melbourne. </i></span></span><br />
<span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif; font-size: small;"><i>Photograph by Tom Ross.</i></span></span><br />
<span style="font-family: "georgia" , "times new roman" , serif; font-size: small;"><i></i></span></td></tr>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-size: small;"></span></span><br />
<span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif;"><br /></span></span>
<span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif; font-size: small;">One of the founders Alice explains in the interview</span></span><br />
<div style="margin-bottom: 0in;">
<span style="font-size: small;"><i><span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-family: Arial,Helvetica,sans-serif;">“I think one of the biggest things is
to try and forget what other people think of you. That’s the
darkness aspect – a place to dance where no one else is watching.
You don’t have to worry about what you look like; you don’t have
to worry about seeing yourself in the mirror because often, we are
our own worst critics. It’s a chance to just enjoy what it feels
like to dance,”</span> </span></i></span></div>
<span style="font-family: "georgia" , "times new roman" , serif;">
</span><span style="font-family: "georgia" , "times new roman" , serif;"></span>
<span style="font-family: "georgia" , "times new roman" , serif;"></span>
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<div style="margin-bottom: 0in;">
<span style="font-family: "georgia" , "times new roman" , serif;"><a href="http://assemblepapers.com.au/2016/02/05/no-lights-no-lycra-alice-glenn-and-heidi-barrett/#social">http://assemblepapers.com.au/2016/02/05/no-lights-no-lycra-alice-glenn-and-heidi-barrett/#social<br /></a></span><br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo3AP5pXTwqt0ogrupPNfTuf6I0IltYvYZYX5sqd_GIB7-TJ_S53BRUVFhXFyoxMKu_m05ZXEUTyBK_4mCEPt0oIoCsiZCljycQAkOTfjIkrFctOoYLSz2qHFrpfrp7a6a6kcJI30-_nUP/s1600/NLNL+FB.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo3AP5pXTwqt0ogrupPNfTuf6I0IltYvYZYX5sqd_GIB7-TJ_S53BRUVFhXFyoxMKu_m05ZXEUTyBK_4mCEPt0oIoCsiZCljycQAkOTfjIkrFctOoYLSz2qHFrpfrp7a6a6kcJI30-_nUP/s640/NLNL+FB.jpg" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From NLNL Facebook page</td></tr>
</tbody></table>
<span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-family: "georgia" , "times new roman" , serif;">NLNL on Facebook </span></span><span style="font-family: "georgia" , "times new roman" , serif;"><span style="font-family: "georgia" , "times new roman" , serif;">
</span></span></span><br />
<div style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;"><a href="https://www.facebook.com/pages/No-Lights-No-Lycra/279364972117239?fref=ts">https://www.facebook.com/pages/No-Lights-No-Lycra/279364972117239?fref=ts</a></span></div>
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-49754856893715557442015-09-12T10:54:00.000+10:002015-09-12T11:24:29.824+10:00Women with alopecia presented as 'whole'<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgifiDm3J2wSYwkE5RQXWPS-kfr6SMFRC3yKXR7vWwwuqD6daRZmK48DXav4Rha1vSiA0dEPRoK9TJhf2c-cDe4O2ZLB0fKMZM5b_ClfCF7rwloRE0_sKYe-s1ui6F_mN-aaZSnXTpV5QmL/s1600/Carly+small.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="208" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgifiDm3J2wSYwkE5RQXWPS-kfr6SMFRC3yKXR7vWwwuqD6daRZmK48DXav4Rha1vSiA0dEPRoK9TJhf2c-cDe4O2ZLB0fKMZM5b_ClfCF7rwloRE0_sKYe-s1ui6F_mN-aaZSnXTpV5QmL/s320/Carly+small.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://video.vogue.com/watch/hair-stories-women-wigs-scarves-hair-loss">http://video.vogue.com/watch/hair-stories-women-wigs-scarves-hair-loss</a></span></td></tr>
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<span style="font-family: Arial,Helvetica,sans-serif;">Alopeciology loves those portrayals in which women speak for themselves, look confidently outwards and where their appearance, their individuality and their identity is enhanced and promoted by what they wear and when the image production values respect them. This video from Vogue ticks all the boxes<br />A top video via Vogue “Living Bald: Life After Hair Loss” (9 Women Tell the Truth About Life After Hair Loss) Personal accounts from women who experienced hair loss from different causes.<br /><br />Definitely a 10!<br /></span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-40669221251942828802015-08-13T19:30:00.000+10:002015-08-13T19:46:33.663+10:00Alopecia Portraits: Who and what is in the frame?<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgba19dnyh3DzSUZkDzRRNvE9UyUOiYLt0Xrn5wtF8Dn6_24WdvPaSsSG5FYLsctQI5eQmnK4c8gVyEmiimhR7jo-BSbJJIQ4WlDpqJM5CG0_W0LRqUyeItH8CJiQtPmQvJiTDnqzyXzP5u/s1600/in+frame.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgba19dnyh3DzSUZkDzRRNvE9UyUOiYLt0Xrn5wtF8Dn6_24WdvPaSsSG5FYLsctQI5eQmnK4c8gVyEmiimhR7jo-BSbJJIQ4WlDpqJM5CG0_W0LRqUyeItH8CJiQtPmQvJiTDnqzyXzP5u/s320/in+frame.png" width="320" /></a></div>
<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;"><br />Some statistics for the
images in the 3 alopecia galleries by photographers Sigga Ella,
Daniel Regan and Anthony Griffin</span></div>
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<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;"><b>Images show
(approximately)</b></span></div>
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</span>
<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Female subjects 95%</span></div>
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</span>
<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Head and shoulders
only 100%</span></div>
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<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Eyes open 52%</span></div>
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</span>
<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Smiling 5%</span></div>
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<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Clothing barely visible
or not visible: 60%</span></div>
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<div class="western" style="margin-bottom: 0in;">
<span style="font-family: Arial,Helvetica,sans-serif;">Over 50 years old
(estimated):20%</span></div>
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<span style="font-family: Arial,Helvetica,sans-serif;">In visual terms, if these galleries represent a developing genre of alopecia portraits
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<span style="font-family: Arial,Helvetica,sans-serif;"><i>"Virtually all will be
young caucasian women under 50, head and shoulders only will be
shown, and fewer than half will be shown wearing clothing, only about
half the subjects will return the camera's gaze and very few will
smile".</i></span><br />
<span style="font-family: Arial,Helvetica,sans-serif;"><i><br /></i>I hope that if we see more alopecia portrait galleries that we can see a less passive subject and know a little more about them visually and in text.<i><br /></i></span></div>
Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com1tag:blogger.com,1999:blog-8759370119743334824.post-24227309130223713792015-08-08T15:08:00.001+10:002022-08-07T12:50:03.500+10:00Photographic portraits of alopecia: Should I close my eyes?<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOUunKl2B4fU_lJB0dgph5OS8N2bzvQjbtTnlt6Q7pAT0bUd156bzP7GQTtV9mkCwzVb6ZzlCGfjkoerIx4WfattQrszbqRwUIgniriiD5-B4P_KAM79TgWvGpK0KSCO_hWV0aEDfEYDoA/s1600/camera+whiteblog.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOUunKl2B4fU_lJB0dgph5OS8N2bzvQjbtTnlt6Q7pAT0bUd156bzP7GQTtV9mkCwzVb6ZzlCGfjkoerIx4WfattQrszbqRwUIgniriiD5-B4P_KAM79TgWvGpK0KSCO_hWV0aEDfEYDoA/s320/camera+whiteblog.jpg" width="320" /></a></div>
<span face="Arial,Helvetica,sans-serif"><b>Background</b>.<br />A recent lively discussion on Alopecia UK’s Facebook page showed a variety of responses to one series of intimate portraits of people with alopecia . The emotional consequences of critiquing these photos surprised both the supporters of the photos and the critics. Maybe it shouldn’t have. What follows is an attempt to explore some of the reasons we should be thinking more about how images of people with alopecia are created and exhibited and what values we might promote in both creating and participating in these projects.<br /><span style="font-size: x-small;">Patricia Crotty 8.8.2015<br />.............</span><br /><br />There are now a number of readily available online alopecia image galleries created by professional photographers, for example by, Sigga Ella (<a href="http://siggaella.com/projects/baldvin">http://siggaella.com/projects/baldvin</a>)/, Anthony Griffin (<a href="http://www.agp.ie/aub/">http://www.agp.ie/aub/</a>) and Daniel Regan (<a href="http://danielregan.com/alopecia/">http://danielregan.com/alopecia/</a>). Audiences for these images include, the subjects of the photographs themselves, the subject’s family, friends and supporters, the wider audience who have alopecia, the general public (awareness raising), the photographer’s peer group (other photographers) and the mass and social media.<br /><br />Until Joseph Gatt, who has alopecia himself, raised some issues<span style="font-size: x-small;">(1)</span> we may have believed that assessing the ‘success’ of these projects was simple and straightforward. Clearly it isn't. Joseph has done us a great service by bravely raising possible ‘downsides’ to these projects, that is the qualities of the images created. Learning from a critical discussion of these projects should be welcomed in this new age of social media and the ready availability of images of people with hair loss, especially women. A critical discussion of these projects will be painful for some, perhaps many, people with alopecia, therefore a more considered response than ‘everyone is entitled to their own opinion’ would be helpful. Viewers of these photos may not only have ‘opinions’, but legitimate concerns such as, the quality of the images from a photographic perspective. It is very likely that many if not most portrait subjects, will experience a truly positive outcome - a sort of post traumatic growth, as a result of their participation. However, what if the 3 projects were compared for an assessment in photographic terms? These are all very intimate images and it seems likely, and understandable, that there will be very personal reactions even when images are critiqued <u>as an image</u>. But from an artistic/professional perspective, it is inevitable that the projects and the photographers’ works will be critically assessed and probably not universally praised.<br /><br />Do we know anything about the impact of these galleries' focus on disembodied head shots with no context, colour or personal information? Their emphasis on skin tone and texture, largely by showing no colour or clothing. It might make an arresting photo, but what story does it tell? It seems possible a photographic genre is being created for women with alopecia. Anthony Griffin in discussing his project, quotes John Berger the art critic and author of ‘Ways of Seeing’, as saying “men act and women appear”. How would a female photographer who has alopecia, capture the essence of men with alopecia I wonder? </span><br />
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<span face="Arial,Helvetica,sans-serif">These galleries of alopecia images do not stand alone, they are embedded in a certain cultural, social and technological context. Are we seeing a reproduction of Berger's view? </span><br />
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<span face="Arial,Helvetica,sans-serif">So much more could be discussed about the creation, use and impact of images of people with alopecia, particularly of women, who make up the vast majority of subjects of alopecia photographic portraiture.<br /><br />There will inevitably be more of these projects and organisers could prepare participants with the best available information about the possible impacts, positive and negative, of their participation, both on themselves and on other audiences. <br /><br />I’m sure the more professional organisations do address this, but there is a paucity of research on many relevant issues, eg. </span><span face="Arial,Helvetica,sans-serif">What specifically is the nature of the success the projects are striving for? </span><span face="Arial,Helvetica,sans-serif">What expectations do participants have of the outcomes for them? What do we mean by ‘raising awareness’ and how do the wider public respond to particular kinds of images?<br /><br />There is a duty of care and an issue of informed consent for participants in these projects and I'd love to be able to read a strong evaluation of their outcomes.</span><span face="Arial,Helvetica,sans-serif"> That requires resources, but it is important.<br /><br />The national alopecia organisations could make a great contribution by taking on these issues and making a thoughtful and educative discussion possible.<br /><br />................<br /><span style="font-size: small;"><br />1. Basically the critique centred around an assessment that the photos were unflattering and unhelpful in promoting positive images of people (principally women) with alopecia. The supporters’ arguments for the photos were around how beneficial participation in the project was for them and how they felt the photos contributed positively to their self image.<br /><br />................<br /><br /></span></span>
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-74516008950784738252015-03-26T14:45:00.000+11:002015-03-26T17:14:29.290+11:00Beauty can have so many meanings!<div style="text-align: left;">
Body Map has a great post on what they call 'contagious beauty'.</div>
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<a href="http://bodymap.com.au/your-best-beauty-is-ahead-of-you-contagious-beauty">http://bodymap.com.au/your-best-beauty-is-ahead-of-you-contagious-beauty</a>/<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYYFuHJ2kV1pmkXJOpIOlQR-aJ3F7iKl8s_szODIlPH010OkGC0PvgvKPR1YNsr3NFynA-h2rD0UWJ5_agT8vwlXOXzzpvQGkvZd8BveFdpUwkGLBzQkjhzuUSHys8COb_oERDB01FR_Bg/s1600/deco+woman.png" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYYFuHJ2kV1pmkXJOpIOlQR-aJ3F7iKl8s_szODIlPH010OkGC0PvgvKPR1YNsr3NFynA-h2rD0UWJ5_agT8vwlXOXzzpvQGkvZd8BveFdpUwkGLBzQkjhzuUSHys8COb_oERDB01FR_Bg/s1600/deco+woman.png" /></a> </div>
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-10738158195572021532015-02-20T10:22:00.002+11:002015-02-20T10:36:38.595+11:00World Championship cycling in FranceThe Australian Women's pursuit team are the world champions......Johanna Rowsell is part of the UK silver medal team, but pure gold as a role model for young people with alopecia!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Johanna on the podium at the World Championships</td><td class="tr-caption" style="text-align: center;"> </td></tr>
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<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-2453848168832917322015-02-19T17:38:00.000+11:002015-02-19T17:46:13.126+11:00First Alopecia Victoria event Feb 26th in Melbourne<div class="separator" style="clear: both; text-align: center;">
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Dr Nadine Cameron from <a href="http://www.bodymap.com.au/">Body Map</a> will be presenting at this evening event in Carlton, Thursday 26th February 6.30 to 8.30, First Floor, 80 Drummond St, on the corner with Queensberry St.<br />
There'll be time to chat with old friends and meet new ones. Join us!!<br />
$5 on the night. <br />
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RSVP to alopeciavictoria@gmail.com<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1GECDAEcsvuBZ7zmqiJKWDYu-6P6q8aOr2W5K4ZGhdL5SAkZHBYlXpbFFPbXSj_dpCA-VWfJRpKILQ5nB_IvOnmWC23gy8hKNDHMaREelfBb9mX3yea-SL88vesWKH7Ar1FGzA-t8r6Uf/s1600/Invitationpng.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1GECDAEcsvuBZ7zmqiJKWDYu-6P6q8aOr2W5K4ZGhdL5SAkZHBYlXpbFFPbXSj_dpCA-VWfJRpKILQ5nB_IvOnmWC23gy8hKNDHMaREelfBb9mX3yea-SL88vesWKH7Ar1FGzA-t8r6Uf/s1600/Invitationpng.png" /></a></div>
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<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com1tag:blogger.com,1999:blog-8759370119743334824.post-55496646606524403312014-10-28T17:09:00.000+11:002018-06-09T13:25:23.507+10:00Self compassion and mindfulness<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDjRVpZniXppY9t-cNMpTLV6kda44qVZOtnJvOeGAZ8g3gFMc0ohtivB6-9kqABpjwKOwbn-Xi7Pw-t6kLsHqDoKH6a4GO19MLrPrqZ0THfaKSFndbfpWCRhs9JG3CAyQT0r9_gM8omcQs/s1600/Cheree_class_Roth_web.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="194" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDjRVpZniXppY9t-cNMpTLV6kda44qVZOtnJvOeGAZ8g3gFMc0ohtivB6-9kqABpjwKOwbn-Xi7Pw-t6kLsHqDoKH6a4GO19MLrPrqZ0THfaKSFndbfpWCRhs9JG3CAyQT0r9_gM8omcQs/s1600/Cheree_class_Roth_web.jpg" width="320" /></a>Have you ever wondered when thinking about the emotional and psychological implications of losing your hair, how a psychologist with alopecia would deal with it? Well, Dr Cheree Hammond has shared her perspective. She teaches counselling and mindfulness at a US university and this is a lovely and thought provoking endorsement of the value of self compassion and mindfulness in creating an emotional environment which promotes the positive and creates valuable learning.<br />
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A great article! Read more <a href="https://bit.ly/2JBrZVL">https://bit.ly/2JBrZVL</a>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com2tag:blogger.com,1999:blog-8759370119743334824.post-22580505944059039362014-10-20T11:04:00.000+11:002014-10-20T12:27:47.170+11:00Battling Alopecia Areata<div style="text-align: left;">
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A great article "Battling Alopecia Areata", with this confronting photo on the cover is definitely worth a read. The whole issue of 'Dermatology World' (4Mb), published in 2012 by the American Academy of Dermatology (aad.org), needs to be downloaded. The relevant article starts on page 14. </div>
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<a href="https://www.aad.org/File%20Library/Dermworld/may-2012-dw.pdf" rel="nofollow" target="_blank"><span style="font-size: x-small;">https://www.aad.org/File%20Library/Dermworld/may-2012-dw.pdf </span></a></div>
<span style="font-size: x-small;"><br /></span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-84267006539921086502014-10-17T15:00:00.000+11:002014-10-20T12:20:14.589+11:00News items on Alopecia UK<div class="separator" style="clear: both; text-align: center;">
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Three informative news items from the Alopecia UK website.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQMjonrTeQwV6CpRV8yFp7EGFDuPs4XB0YwgHuE_MvjJpHUcqnpslzsJYGg5ax5rTudtIwwp9Aie4cj9RMhuPBNcGnxV7JUhJuSOqNjXgrkVi2I5RZhVe690ocFt5BSjUpUKlUbPbhmbI3/s1600/ads+20s+9.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQMjonrTeQwV6CpRV8yFp7EGFDuPs4XB0YwgHuE_MvjJpHUcqnpslzsJYGg5ax5rTudtIwwp9Aie4cj9RMhuPBNcGnxV7JUhJuSOqNjXgrkVi2I5RZhVe690ocFt5BSjUpUKlUbPbhmbI3/s1600/ads+20s+9.jpg" height="320" width="317" /></a>
<li>Joanna Rowsell is now and ambassador for them and is supporting the Priority Setting Partnership conducted by the <a href="http://www.lindalliance.org/">James Lind Alliance</a></li>
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<li><a href="http://www.changingfaces.org.uk/">Changing Faces</a> have run a workshop for parents and included parents whose child has alopecia </li>
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<li>The charity calendar featuring bare naked alopecia ladies has gone gangbusters! </li>
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Pay Alopecia UK a visit, their link is on our Blogroll at right. </div>
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<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-16320629201714756442014-10-11T09:28:00.000+11:002014-10-20T11:34:22.340+11:00Face Your Fears: A useful skill for all aspiring alopeciologists!<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipaZRZ49MigqihHNqc6ycfhn0_R4gVQrBA0KIX873iisEjWTZiyhJTMEZDvoTM-w8TBTNuy0srbupVVEEGQ4HcxFuJHfEfBNYEvVvss3bsDBlA0rSr4h3vM-30ATfJbmChXOsIXf34Eikg/s1600/382px-Edvard_Munch_-_The_Scream_-_Google_Art_Project.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipaZRZ49MigqihHNqc6ycfhn0_R4gVQrBA0KIX873iisEjWTZiyhJTMEZDvoTM-w8TBTNuy0srbupVVEEGQ4HcxFuJHfEfBNYEvVvss3bsDBlA0rSr4h3vM-30ATfJbmChXOsIXf34Eikg/s1600/382px-Edvard_Munch_-_The_Scream_-_Google_Art_Project.jpg" height="320" width="254" /></a><i> </i><br />
<i><a href="https://www.changingfaces.org.uk/Home">'Changing Faces'</a></i> and the British Skin Foundation have joined forces to run "FACE YOUR FEARS" week in the UK 13th to 20th October.<br />
Given the fears that dog people with alopecia in social situations, what activities might help us face that fear and master an important skill?<br />
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http://bit.ly/1t14JRC<br />
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-791053997847275032014-10-08T14:28:00.000+11:002014-10-08T14:30:42.296+11:00Julie Gale stands up for more empathy for why a woman may be wearing head covering<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">Herald Sun photo by Mike Keating<span style="-webkit-text-stroke-width: 0px; background-color: #f8f8f5; color: #666666; display: inline !important; float: none; font-family: 'Guardian Sans', Tahoma, 'Trebuchet MS', TrebuchetMS, sans-serif; font-size: 14px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 18px; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px;"></span></td></tr>
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Oh dear oh dear oh dear...common sense prevails but not without first embarrassing a woman wearing a scarf entering a courtroom in Melbourne. What's really disappointing are many of the comments from readers. Still they picked the wrong woman to humiliate, she has well and truly stood up for questioning a gross insensitivity...This is a skilled woman in the best sense of alopeciology. <br />
A good example of the need for some public education about the experience of losing your hair! <a href="http://bit.ly/1vOvR70">http://bit.ly/1vOvR70</a><br />
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<span style="-webkit-text-stroke-width: 0px; background-color: #f8f8f5; color: #666666; display: inline !important; float: none; font-family: 'Guardian Sans', Tahoma, 'Trebuchet MS', TrebuchetMS, sans-serif; font-size: 14px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 18px; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px;"></span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-62025098543478283742014-10-06T10:56:00.000+11:002014-10-06T10:56:42.358+11:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoMkoEGQwQMQg6irA_GcPAN7lWTS65iXz7_CGCwtdXPwuoHX-SSRsoAV3xcyTpq3HsBCyWKlQzKBFrpa10LVxjtAncki5PlgicAdGynOnK6YHBo8opFaSX0Z1hvGUium1NGMK_WBihGTxL/s1600/thumbnail_image718.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoMkoEGQwQMQg6irA_GcPAN7lWTS65iXz7_CGCwtdXPwuoHX-SSRsoAV3xcyTpq3HsBCyWKlQzKBFrpa10LVxjtAncki5PlgicAdGynOnK6YHBo8opFaSX0Z1hvGUium1NGMK_WBihGTxL/s1600/thumbnail_image718.jpg" /></a></div>
Changing Faces is a not for profit organisation in the UK which supports people who look different whether from a trauma or a medical condition. They have just released a report "Look at Me" which urges the UK National Health service to pay more attention to the psychosocial aspects of dermatology care. You can read the report here <a href="http://bit.ly/1vzDFsk" rel="nofollow" target="_blank"><br />http://bit.ly/1vzDFsk </a><br />
or visit their web page for info about the report and the issues it covers<br />
<a href="http://bit.ly/1nWeJLP">http://bit.ly/1nWeJLP</a><br />
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<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-58003750821647512072014-09-16T17:55:00.002+10:002014-09-16T17:55:55.796+10:00<span style="font-family: Verdana,sans-serif;">WooHoo NLNL (No Lights No Lycra) have a schmik web page</span><br />
<span style="font-family: Verdana,sans-serif;">Who will organise the first alopecia NLNL??</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghBctux-Si6CZpxEHsVR56BI4oOB-WVjtnM_0TZy2qWL-CoG-LJML5J9RgAJL5aeEdeuBJ9k00IEw3VoszrD4d_JuOzYI3rMS0dXiDQtRe3fkdgzpszOQW8k8ebE-6qDe-Hv1QvBmYHlm6/s1600/nlnl-e1342748898543.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghBctux-Si6CZpxEHsVR56BI4oOB-WVjtnM_0TZy2qWL-CoG-LJML5J9RgAJL5aeEdeuBJ9k00IEw3VoszrD4d_JuOzYI3rMS0dXiDQtRe3fkdgzpszOQW8k8ebE-6qDe-Hv1QvBmYHlm6/s1600/nlnl-e1342748898543.jpg" height="161" width="320" /></a></div>
<br /><a href="http://nolightsnolycra.com/the-nlnl-story/">http://nolightsnolycra.com/the-nlnl-story/<br /></a><br />
<span style="-webkit-text-stroke-width: 0px; background-color: black; color: white; display: inline !important; float: none; font-family: lato, sans-serif; font-size: 13px; font-style: normal; font-variant: normal; font-weight: 300; letter-spacing: 1px; line-height: 19.5px; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px;">No Lights No Lycra is an dance community that started in Melbourne by unruly dance students Alice Glenn and Heidi Barrett in 2009. There is no light, no lycra, no teacher, no steps to learn, no technique, just free movement. NLNL is a space where you can completely let go, shake out the stresses of the week, and lose yourself in the music and the physicality of your body. NLNL is a daggy, non-pretentious place to completely be yourself.</span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-13267049555669741992014-09-16T09:02:00.000+10:002014-09-16T11:38:02.631+10:00Ditching self consciousness - Another alopeciology skill!<span style="font-family: Verdana,sans-serif;"><b>No Lights No Lycra</b> - a dance craze started in East Brunswick, Oz now has 42 communities around the world. <a href="http://ab.co/1wwDOzj">http://ab.co/1wwDOzj</a></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfrEiLtNUjsdBVj3NXxM0MrCWUu8icXg3w6eIXdPA4ILvqBZc8bKscbc6ICEEvQ9blM_6sicE220t_86d_usMI-AiM7lgCumWjfHdjYvx5U8EaA4rNIAba2ei-02BgcOL2Zhd8uIDp7Wtb/s1600/nolightsnolycra.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfrEiLtNUjsdBVj3NXxM0MrCWUu8icXg3w6eIXdPA4ILvqBZc8bKscbc6ICEEvQ9blM_6sicE220t_86d_usMI-AiM7lgCumWjfHdjYvx5U8EaA4rNIAba2ei-02BgcOL2Zhd8uIDp7Wtb/s1600/nolightsnolycra.png" height="201" width="320" /></a></div>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">"For many of us, the idea of dancing in public is terrifying. The only
time we will bust out some real moves is at home in our living rooms,
when no-one can see.<br />But now there is a space where you can do just that, but in the company of others, because the lights are switched off". Perfect activity for the less 'out there' amongst us, age-friendly, no alcohol mayhem.</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Watch the program <a href="http://ab.co/1oSmWv7">http://ab.co/1oSmWv7</a><br /></span></span><br />
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Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com1tag:blogger.com,1999:blog-8759370119743334824.post-91761074435842162282014-09-14T15:59:00.001+10:002014-09-14T16:01:25.732+10:00'Pretty Bald' a nude fundraising calendar<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/1xXNrWMpR0k?feature=player_embedded' frameborder='0'></iframe><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /><span style="color: #666666;">Fundraising nude calendars which seem a very British creation, are really popular. In 2008 it was estimated that somewhere around 6000 have been made. 'Pretty Bald', the alopecia nude calendar just released in the UK has raised thousands of pounds for the UK charity Alopecia UK </span></span></span><span style="color: #666666;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-family: "Guardian Sans",Tahoma,"Trebuchet MS",TrebuchetMS,sans-serif; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-family: "Guardian Sans",Tahoma,"Trebuchet MS",TrebuchetMS,sans-serif; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><a href="http://dailym.ai/1lKrasI">http://dailym.ai/1lKrasI</a></span></span></span></span> </span></span></span><br />
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<span style="color: #666666;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">In </span></span><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">2008 </span></span><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">The Daily Telegraph reported some research <span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"><a href="http://bit.ly/1wkmqe5">http://bit.ly/1wkmqe</a><a href="https://www.blogger.com/null">5</a> </span>by <span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">Dr Pamela Turton-Turner, of the University of Tasmania. </span></span></span></span><br />
<span style="color: #666666;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">Her research suggested the most successful calendars </span><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">are funny, the naked bodies sanitised rather than erotic, and the public must regard the charity as worthy. </span><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"> She notes one of the failures was the Australian Matilda's </span><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">2000 soccer team calendar, because the images were too sexually explicit.</span></span></span></span></span><br />
<span style="color: #666666;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"></span></span></span></span></span><br />
<span style="-webkit-text-stroke-width: 0px; background-color: whitesmoke; color: black; display: inline !important; float: none; font-family: 'Guardian Sans', Tahoma, 'Trebuchet MS', TrebuchetMS, sans-serif; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px;"><span style="-webkit-text-stroke-width: 0px; background-color: whitesmoke; color: black; display: inline !important; float: none; font-family: 'Guardian Sans', Tahoma, 'Trebuchet MS', TrebuchetMS, sans-serif; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: auto; word-spacing: 0px;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #666666;"><span style="background-color: whitesmoke; display: inline ! important; float: none; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 24px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">Did the UK calendar hit the mark?</span> You can buy a copy for 10 Pounds from the Pretty Bald webpage <a href="http://www.prettybald.co.uk/the-calendar">http://www.prettybald.co.uk/the-calendar</a>/ </span>. </span></span></span> </span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-69958467178458251652014-08-27T09:51:00.002+10:002014-09-02T10:12:51.251+10:00The art of living with alopecia - treatment decisions<div style="text-align: left;">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA9VcPp9Vb20BOeyqYmt6_IOMrW_iw9Dn2f87WouV5krFCUErajngN8bQ85sTc3c8kwLR_eH57PBlrd2NYLVIxV3yyV6f8e5OzztNGUnXa7LaANERTtMSP0VbrcAENOhLuuzYHgw3TT-MF/s1600/the+thinker.png" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA9VcPp9Vb20BOeyqYmt6_IOMrW_iw9Dn2f87WouV5krFCUErajngN8bQ85sTc3c8kwLR_eH57PBlrd2NYLVIxV3yyV6f8e5OzztNGUnXa7LaANERTtMSP0VbrcAENOhLuuzYHgw3TT-MF/s1600/the+thinker.png" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Image: flyingcatsandglitter on deviantarts<br /><a href="http://fav.me/d738ms6">http://fav.me/d738ms6</a></td></tr>
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Here’s a succinct message from Dr Victor Herbert (talking about choosing alternative therapies but just as applicable to AA treatments)<br />
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"Every therapy has side effects and the potential for harm. Before trying any new remedy, get the answers to three questions<br />
1. Is this treatment more effective than doing nothing?<br />
2. Is it as safe as doing nothing?<br />
If there are questions about safety, <br />
3. Does the potential benefit exceed the potential harm?"<br />
<a href="http://www.victorherbert.com/cv835pr.pdf">http://www.victorherbert.com/cv835pr.pdf</a>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-58404577861441193572014-08-26T09:14:00.000+10:002014-08-26T09:14:07.796+10:00Ruxolitinib - Still looking like a treatment not a cure<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo-fqpSq89Rxh4lHGnUhnE7UqSQXLY9IDr1cEGhgavcJ-MEMJt1CSHNHfhcVRsZCdsCMDU2cNLSFuKVIzTB3L6GTvsOfhOz6hldM3kPYwKr8PvNSXQuEsR3mUnJ6TgBsTF-7J2kW9NDCzn/s1600/smileyquestion.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo-fqpSq89Rxh4lHGnUhnE7UqSQXLY9IDr1cEGhgavcJ-MEMJt1CSHNHfhcVRsZCdsCMDU2cNLSFuKVIzTB3L6GTvsOfhOz6hldM3kPYwKr8PvNSXQuEsR3mUnJ6TgBsTF-7J2kW9NDCzn/s1600/smileyquestion.png" /></a><span style="font-family: Verdana,sans-serif;">Some extra info from a US radio interview with Raphael Clynes (co-investigator) on August 24th <i>".....We then treated a few patients - now nine patients with Alopecia Areata with a drug called a JAK inhibitor. And the results are remarkable. Six of the nine first patients treated have had excellent responses".</i><br /><a href="http://m.nhpr.org/?utm_referrer=#mobile/54288">http://m.nhpr.org/?utm_referrer=#mobile/54288</a></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: x-small;">My question - How successful a treatment is it in the long term? Will those 6 out of nine people have relapses without continuing treatment? And...this looks like progress but we still have the side effects to consider.</span></span><br />
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<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-73734775290531056262014-08-25T15:07:00.000+10:002014-09-02T10:17:23.467+10:00Another contribution to the alopeciology "art of understanding alopecia"<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKSkeiFhrnHYBp3c7vGu07zLswMjiNYEOd9cwxf1eTPOqAfAlhyDLBaCWxSlsPLygDRYGqyqSOztBdsqBP3Ogj8mHAYhD85l6KgBbm-oTGMqaj4LY5LSrEBBBdnej1Yun6w5mi6cTk0ida/s1600/Angela+C.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKSkeiFhrnHYBp3c7vGu07zLswMjiNYEOd9cwxf1eTPOqAfAlhyDLBaCWxSlsPLygDRYGqyqSOztBdsqBP3Ogj8mHAYhD85l6KgBbm-oTGMqaj4LY5LSrEBBBdnej1Yun6w5mi6cTk0ida/s1600/Angela+C.png" height="199" width="320" /></a></div>
This video from Columbia University has Angela Christiano explaining the research that led up to the ruxolitinb anouncement. A good non technical account ..... with diagrams<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOtcVKxoNFhk0qE0UXRvosw1niSZQi1QBh_M9wQKWWXdvJMJ9wGG3sjuTdVIzKHwZjSD1hJxSvinE444Wp0qNAxTBbsERqBMAr7ARKaCN04oIczwtOx594LgNbYPem2mCpsqrMVf7LMlQg/s1600/Christiano+and+Clynes.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOtcVKxoNFhk0qE0UXRvosw1niSZQi1QBh_M9wQKWWXdvJMJ9wGG3sjuTdVIzKHwZjSD1hJxSvinE444Wp0qNAxTBbsERqBMAr7ARKaCN04oIczwtOx594LgNbYPem2mCpsqrMVf7LMlQg/s1600/Christiano+and+Clynes.png" height="149" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Drs Christiano and Clynes at work</td></tr>
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<span style="font-size: large;"><a href="http://vimeo.com/103265367">http://vimeo.com/103265367</a></span><br />
<br />Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-2883826523581000792014-08-25T10:26:00.000+10:002014-09-02T10:20:46.463+10:00A nice summary of relevance of the new drug for AA<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDV5e2mmUFX0draiUymHwo7tLKqNc7SrP5-C7Ok04EcK3EZdpGu94y6VDFI3ODZ4cLQA9DSzT6R_HPAVdBz-NdjJ8Urr8-mmccMhYYPckgoABfy1AMSsEVrVx2HFpVPjvwIPYh-XtvlcsF/s1600/dr_jeff_donovan.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img alt="" border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDV5e2mmUFX0draiUymHwo7tLKqNc7SrP5-C7Ok04EcK3EZdpGu94y6VDFI3ODZ4cLQA9DSzT6R_HPAVdBz-NdjJ8Urr8-mmccMhYYPckgoABfy1AMSsEVrVx2HFpVPjvwIPYh-XtvlcsF/s1600/dr_jeff_donovan.jpg" title="" /></a><span style="font-family: Verdana, sans-serif;">Dr Jeff Donovan, dermatologist, advises the Canadian Alopecia Areata Foundation. Read his summary of the information about ruxolitinib</span></div>
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<a href="http://canaaf.org/dr-donovan-ruxolitinib-potentially-new-treatment-alopecia-areata/"><span style="font-family: Verdana, sans-serif;">http://canaaf.org/dr-donovan-ruxolitinib-potentially-new-treatment-alo</span>pecia-<span style="font-family: Verdana, sans-serif;">areata/</span></a></div>
Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-79766931511983167752014-08-20T11:12:00.000+10:002014-09-02T10:22:07.878+10:00 Ruxolitinib story in the USA - Criticisms of media coverage <div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKjYL3a5R4R2GvNFcnqCcxP-IQex1DR_6GoCLpL6MUOgVPCRFn7G6WCA-n03XY0Cu-5LkBsTJzJpVwX4Lq7FEXasW5zQpHDPKekRmtjzFDnScFQdB_RLmCI4p_0fzkTFqqchnHL8MSh4z7/s1600/clouredglas.BMP" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKjYL3a5R4R2GvNFcnqCcxP-IQex1DR_6GoCLpL6MUOgVPCRFn7G6WCA-n03XY0Cu-5LkBsTJzJpVwX4Lq7FEXasW5zQpHDPKekRmtjzFDnScFQdB_RLmCI4p_0fzkTFqqchnHL8MSh4z7/s1600/clouredglas.BMP" height="200" width="133" /></a><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></span></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Gary Schwitzer blogs on evaluating the quality of evidence and health journalism. He is a critic of reporting of the trial of ruxolitinib and raises some good questions about the NYT article we linked to yesterday<br />Here’s some of what he said and the questions he asks<br />“........ the Times was too vague about the numbers. It explained that the drug ruxolitinib had been tested on seven women and five men. But then it vaguely reported:<br /> “The results for Brian and several other participants have been significant.” (Our questions: How many is several? What does significant mean? Only the one patient’s – Brian’s – experience is detailed.)<br />It helpfully explained that “so far a few participants did not regrow hair.” (Our question: How many of the 12?)<br />It helpfully reported a quote from one of the researchers: “It appears to work — not in everyone, but in the majority,” she said. “We need a lot more data on the long-term risks in healthy individuals.”<br />Read more <br /><a href="http://www.healthnewsreview.org/2014/08/hair-loss-treatment-data-in-3-people-gets-widespread-and-often-weak-news-coverage/">http://www.healthnewsreview.org/2014/08/hair-loss-treatment-data-in-3-people-gets-widespread-and-often-weak-news-coverage/</a></span></span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0tag:blogger.com,1999:blog-8759370119743334824.post-7001305339989875662014-08-18T07:50:00.000+10:002014-08-21T15:13:23.578+10:00Another new drug trial announcement today<span style="font-family: Verdana,sans-serif;">One of the arts of living with alopecia is trying to sort out what new drug announcements really mean. Here's the latest one from the US - <span style="background-color: white; color: #333333; display: inline ! important; float: none; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 23px; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">ruxolitinib</span>. In the New York Times, US dermatologists themselves have conflicting views <a href="http://www.nytimes.com/2014/08/18/health/alopecia-patients-in-study-grow-hair-with-new-drug.html?_r=0">http://www.nytimes.com/2014/08/18/health/alopecia-patients-in-study-grow-hair-with-new-drug.html?_r=0</a></span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com1tag:blogger.com,1999:blog-8759370119743334824.post-15826114506370905912014-08-16T12:42:00.000+10:002014-09-02T10:47:26.786+10:00The International Dermatology Patient Organization Conference June 2015 in Vancouver<div style="text-align: left;">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8ht-7T1O-ERokXEZ7a_dSykpM4Xretzja9fZh_9IQg_eeW_ikLcyFTADjRgrZehogkexyTRlgh0JyXyKFhsolcucjGHZvQnZLzxufWT4ogTYiDbxXwFiMVVofhZm-qpOJlDzDPr2-1q2Z/s1600/dermptconf2015.png" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8ht-7T1O-ERokXEZ7a_dSykpM4Xretzja9fZh_9IQg_eeW_ikLcyFTADjRgrZehogkexyTRlgh0JyXyKFhsolcucjGHZvQnZLzxufWT4ogTYiDbxXwFiMVVofhZm-qpOJlDzDPr2-1q2Z/s1600/dermptconf2015.png" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Link to conference website <a href="http://idpoc.com/">idpoc.com</a></td></tr>
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<span style="color: #666666;"><span style="font-family: Verdana,sans-serif;">Great news!! This conference to be held next year in conjunction with the <a href="http://derm2015.org/">World Congress of Dermatology </a>(WCD)in Vancouver. The <a href="http://www.skinpatientalliance.ca/en">Canadian Skin Patient Alliance</a>
(CSPA) represents many diagnosis groups, alopecia, psoriasis, vitiligo
and more and their theme will be about promoting leadership in support
groups. This is a first for the WCD conferences! A voice for patient
organisations in the conference program. Here's what the CSPA are
saying</span></span></div>
<span style="font-family: Verdana,sans-serif;"><br /><span style="color: #999999;"><br /><i>"Skin patient organizations serve a unique role with their focus on the medical, psycho-social, and health needs of the individual with a skin, hair or nail disease and with their community-based structure. These organizations’ activities include, but are not limited to: educational programs, rehabilitative and financial support programs for patients or their families; advocacy to the government and fund-raising for research. ......... By inviting the world’s patient organization leaders to the World Congress of Dermatology (WCD) 2015 to participate in a multi-day conference dedicated to leaders of dermatology patient support organizations, the WCD and the global dermatology community confirm the importance of the role played by these patient groups in promoting dermatology issues". </i></span></span><br />
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<span style="font-family: Verdana,sans-serif;">Yay!!!! More to come on this as the event gets closer</span>Pathttp://www.blogger.com/profile/18299679065254887476noreply@blogger.com0